Survivors

K, wrote me yesterday, "I saw on your site many obituaries and memorials of others, but are there any other survivors out there? I am looking to see what others have been through, I am looking for hope."

Yes, there are many survivors out there. I suppose I should write about that too. I am always consumed with trying to remember those that have left us that I forget about those who are still with us.

Thank you, K, for writing and asking about the well being of the the survivors of ACC. I am sending thoughts and prayers to you and your friend. Please tell her that we are here.

Debby is a 17-year ACC survivor.

Debby and I first met at the ACC Conference last October.

Margaret and Troy

Margaret is the founder of our ACC Compassion Support Group. She started the group in the name of her father, Carl, who died from Adrenal Cancer almost two years ago. Words can never truly express what she's done and continues to do for all of us.

Troy, along with TGEN, recently produced an exceptional video that talks about his survivorship (two time survivor) and the ATAC research fund which he started. It's amazing what he's done in such a short amount of time. ATAC stands for Advancing Treatments for Adrenocortical Carcinoma.

In addition to Debby, Margaret, and Troy's survivorship, Weston Johnson is hosting an ACC Fundraising Benefit in New York on July 5th. Weston's fiancee, Coni, passed away last year. All you can eat, raffle gifts, and most of all friends and family. And it's in New York. Need I say more?

Who's going to be in the Los Angeles area the weekend of July 8th? We are planning a little gathering to coincide with the New York fundraising event. Perhaps we can meet once a month on a regular basis. Let me know if you are interested by dropping me a note...cureacc at gmail dot com.


Here's a photo of some of us survivors and caregivers who met last fall in Arizona for our first ever Adrenal Cancer Conference:


We missed you, Mr. Dick Beverlin! Actually we missed a lot you that weren't able to make it.

There are many of us seizing life at the reigns. This is just a handful of us that were able to make the trip out to Arizona. But there are so many of us alive and kicking cancer's butt! Hope to see you all soon.