Dear Kim,
I read your beautifully written book. I had to put it down at times because of your very vivid detail of your precious journey. Anger came over me after reading your brilliant book because...well you're not here...for the lack of medicine...so many things. With the constantly advancing technology you would think that treatment would change but it doesn't seem the docs are getting anywhere. I've calmed down a bit since and I plan to read your book again. At such a young age you've written with so much wisdom. You are right. Life is right now.
Margaret is putting together an Adrenal Cancer Summit for a meeting in Arizona. She lost her father to ACC last September and continues the fight the battle. Survivors will be meeting for the first time, along with caregivers, and hopefully doctors. We're planning on gathering in October.
Sorry I didn't write sooner.
"Do you remember when we first met? I sure do, it was some time in early September." I remember we would talk about our love of the ocean and of course Jack Johnson, the one and only. We talked about meeting up one day. Until then my dear friend, I'll be sitting, waiting, wishing.
P.S. I'm posting a photo you sent me not too long ago. I love this photo. Hope you don't mind...I added Jack to the collage.