16 January 2006

NED


Norris Hospital at USC


NED. My *December CT shows no evidence of disease.

I spent my morning at the Norris Hospital at USC. First I went to see Dr. Quinn to discuss my last two CT's. The nurse took my blood pressure and said it was quite high at first. "Are you nervous?" I really was not. So he took it again and this time it was 145/90. Still above normal but much lower than the first time. The "patchy densities" that were there in my lung found on my **August CT have gotten smaller. Dr. Quinn reviewed the December CT and concluded that it may have been an infection.

He advised another CT in six months and sent me to get bloodwork. Afterward I strolled the unusually quiet campus (it's Martin Luther King day) and walked over to the research library. There's usually no problem perusing the full text of their online medical journals if I have my patient card and I let them know I'm doing research on myself. I'll usually browse the support group's articles and see that Dr. D has found the same article already. Some docs don't like it when the entire article is passed around due to copyrights so I won't post the full text. Just click on the link and see if the article is still there (not sure how long the full text will be up). I don't know what I expect to find when reading the journals. It's just good to know what's happening out there in the small world of Adrenal Cancer. Still no registry on Adult Adrenal Cancer.


*CT on 12/16/05
IMPRESSION: Patchy pleural based densities in the left hemithorax have diminished in size. Fatty infiltration within the liver. Left adrenalectomy and nephrectomy unchanged.

**CT on 8/11/05
IMPRESSION: Patchy densities in the left lower lobe, new since the prior study. This is thought to be due to inflammation or atelectasis. Malignancy, although unlikely, cannot be excluded.

11 January 2006

Your Health In a Nutshell

As with any guarded diagnosis, a second, third or fourth opinion may take you to see many doctors. Your portable medical history at a glance will make it easier for your new medical team to gather data so they can assist you faster and get a fuller picture of your cancer journey. Following is a sample.



Aileen C. Carter
Updated: January 2006
DOB: August 3, 1973



Allergies: Sulfa, Penicillin, Iodine


CANCER DIAGNOSIS AND RECOVERY RECORD
Diagnosis: Adrenocortical Carcinoma (ACC)

1998
4/98 - CT discovered mass in left quadrant of abdomen.
5/98 – Surgery to remove mass (11 x 11 x 9 cm, 800 grams). Radical left nephrectomy/adrenalectomy.
Pathology: Adrenocortical Carcinoma

2002
1/02 – Follow-up CT discovered 6 cm mass in right lobe of liver
2/02 – Liver resection to remove partial mass in right lobe. Pathology: Adrenocortical Carcinoma metastasis.
5/02 – Right oophrectomy to remove benign 6 cm mass.


MEDICATION

PRESCRIPTION DRUGS
Prednisone – 8 mg/day
Aspirin – 250 mg/day

CHEMOTHERAPY
Cisplatin = 180mg/4 weeks
VP-16 – 540mg/4weeks

VITAMINS
Vitamin C – 2 to 4 grams/day
Multiminerals – 1 tablet/day