Ellen Auerbach wrote me about her beautiful daughter, Alison, who passed away last year after being diagnosed with ACC, "My daughter Alison was diagnosed with ACC in her seventh month of pregnancy. For her it was too advanced when it was found and she had no chance. On September 5, 2003 they did a C section and my granddaughter Rebecca was born. She was only 3 pounds 9 oz and very sick at birth. Alison only saw her daughter 2 times and then we had her moved from Albany Med Hospital in Albany NY to Sloan Kettering in NYC. There she was treated by Doctor Deborah Schrag. She was very weak from the surgery and her body could not fight the cancer or the infection from the c section. Alison died on September 21,2003 two days before her 29th birthday. In her case they feel the hormones from pregnancy made the cancer grow very quickly. In August 2003 she was scuba diving and swimming and then she began to feel very weak and could not eat. We too were told that this was a one in a million cancer. Rebecca, my granddaughter is doing wonderfully. She spent the first 3 months of her life in the NICU at Albany Med. Then came home on oxygen. She is a fighter like her mother and our miracle baby. We were all and still are devastated by what happened. Alison was a wonderful human being and similar to you she enjoyed life and loved people. I would love to help you to inform people about ACC and I will certainly sign your petition. I hope you are doing okay. My thoughts are with you."
To read more about Alison, visit her web page http://alisonauerbach-barr.org/
