20 December 2004
Interview for a newspaper
I took an introductory web site class last year with Dr. Westfall at Cal Poly Pomona. He had never taught the intro class before and, due to budget cuts, has never taught the class since. Initially, I had wanted to take the class so I could write about my frustrations with the lack of treatment for ACC. I also wanted to reach others who were going through the same situation. Being diagnosed and feeling you are the only one with a rare cancer is very distressing. Aside from surgery, there is no proven treatment for ACC to keep it from coming back. Maybe if more of us banded together we could change the treatment of ACC.
I will always be grateful for Dr. Westfall’s dedication in getting my story published in the newspaper. He wrote to several people at Cal Poly but I don’t think they were interested. Uyen Mai, a Cal Poly spokesperson, sent the story to Lisa McPheron, an education reporter, at the Daily Bulletin. Lisa emailed me a few days ago about doing a story on me. We met last Wednesday night at a cafĂ© to talk about my experience with cancer, outreach and support. This morning I woke up with an uneasy feeling. What will be written? Who will read it? I hope people don’t feel pity because that is the very last thing I would ever want. My younger sister called at 5 am this morning saying she bought two copies. I held my breath. She continued to read it and then said, “Oh my God!” I asked, “What?” She answered, “They mention your age, like, ten times.” I'm not that old! It was her way of saying that I worried for nothing.The newspaper has the heading, Web of Hope, along with two photos of me and my students in the classroom. I am very happy with the article. I called Lisa to thank her and even stopped by to drop off a Christmas gift. She declined because of the Bulletin's ethics policy. Thank you to Dr. Westfall, Uyen, Lisa and Therese.
Read the web article here. Happy Holidays!
18 December 2004
I heart Lance
I ordered and received my livestrong wristband from the Lance Armstrong Foundation in the mail today! Proceeds benefit people around the world living with cancer.
I have a few to give away to the first 10 people who email me. Mention the LAF wristband in the subject line and email me: cureacc at gmail dot com
01 December 2004
'Tis the season to give the gift of life
¤ Donate your hair to young children at LocksofLove.org Help restore self-esteem and confidence by helping these young kids face their peers and the world.
¤ Donate blood today. Find a blood drive right now! GiveLife.org Donating blood is a simple process that saves more than four million American lives each year. Blood is needed every three seconds. One out of three needs donated blood in their lifetime. One out of 10 hospital patients needs a transfusion. Blood is always needed for treatment of accident victims, cancer patients, hemophiliacs and surgery patients. There is no subsititute for blood.
¤ Renewing your driver's license soon? Transplantation saves lives, but only if you help. All you need to do is say Yes! to organ and tissue donation on your donor card and/or driver's license, sign up on your state’s donor registry (if there is one), and discuss your decision with your family. Each day about 70 people receive an organ transplant, but another 16 people on the waiting list die because not enough organs are available. Think about this the next time you renew your driver's license. Become an organ donor today. OrganDonor.gov
01 November 2004
Alison's story
Ellen Auerbach wrote me about her beautiful daughter, Alison, who passed away last year after being diagnosed with ACC, "My daughter Alison was diagnosed with ACC in her seventh month of pregnancy. For her it was too advanced when it was found and she had no chance. On September 5, 2003 they did a C section and my granddaughter Rebecca was born. She was only 3 pounds 9 oz and very sick at birth. Alison only saw her daughter 2 times and then we had her moved from Albany Med Hospital in Albany NY to Sloan Kettering in NYC. There she was treated by Doctor Deborah Schrag. She was very weak from the surgery and her body could not fight the cancer or the infection from the c section. Alison died on September 21,2003 two days before her 29th birthday. In her case they feel the hormones from pregnancy made the cancer grow very quickly. In August 2003 she was scuba diving and swimming and then she began to feel very weak and could not eat. We too were told that this was a one in a million cancer. Rebecca, my granddaughter is doing wonderfully. She spent the first 3 months of her life in the NICU at Albany Med. Then came home on oxygen. She is a fighter like her mother and our miracle baby. We were all and still are devastated by what happened. Alison was a wonderful human being and similar to you she enjoyed life and loved people. I would love to help you to inform people about ACC and I will certainly sign your petition. I hope you are doing okay. My thoughts are with you."
To read more about Alison, visit her web page http://alisonauerbach-barr.org/
01 October 2004
Seize the Day
My mother's mom, my grandmother, Marcela, died due to pancreatic cancer in 1972. My aunt Aida also died to pancreatic cancer just two years ago. The list goes on with friends and other family members who continue to fight different types of cancer and my heart goes out to everyone. October is Breast Cancer Awareness Month and right now would be a good time to examine your beautiful self, especially your breasts. If you don't already do a regular breast self-examination (BRE), start doing it each month. So seize today and seize your breasts!
Earlier Detection Methods from y-me.org:
Get a routine mammogram. Y-ME, a National Breast Cancer Organization recommends that women begin annual mammography screening at age 40. Women under 40 with either a family history of breast cancer or other concerns about their personal risk should consult a medical professional about when to begin mammography.
See your medical professional on a regular basis. A clinical breast examination should be part of your routine checkup. Beginning at age 20 women should have a clinical breast exam every 2 to 3 years. Women age 40 and older should have one every year.
Perform breast self-examination once a month. If you find something that you know is unusual for you, have a doctor check it out. A LUMP YOU FIND SHOULD NEVER BE IGNORED.
Photos contributed by Tito Freddie and Lola Mitreng. Layout designed by Chino Express Printing & Graphics.
01 September 2004
Relay for Life
I am so glad that I did the relay. The relay was held over a 24-hour period on August 28-29 with team members alternating laps, ensuring that one of them always stays on course. It opened with a survivor lap and ended with a beautiful luminaria ceremony where candles are lit for those who have died or those who those who continue to fight the cancer battle. It was great working with others in raising funds for the American Cancer Society.
I was able to raise $428 and I got a free shirt. My cousin, Ruth, and I signed up for the 12:30 am to 2:30 am shift. Our grandmother and aunt lost their battle to pancreatic cancer. Ruth and I (see above photo) were part of the group that walked the 1,000th lap! It was a memorable experience and fun challenge as we walked the track by candlelight early Sunday morning. To all my sponsors: I am so very grateful for your support and well wishes!
31 August 2004
2nd annual Cure ACC! raffle raises $400
Thank you to all those that participated in the 2nd annual raffle to raise funds and awareness for treatment of the rare Adrenal Cortical Carcinoma. A special thank you to Dawna, Katherine, and Jennifer for donating the raffle prizes!
Drum roll please...The winners: Sonya ~ Sting tickets, Leni ~ Borders card, May ~ Disney passports, John ~ Starbucks card, Jeannie/Tina ~ jewelry, Jinky ~ Chris Isaak cd, Geni/Mark ~ Sarah MacLachlan cd. 100% of proceeds will be donated to the MD Anderson Adrenal Cancer Research Fund at the University of Texas.
Drum roll please...The winners: Sonya ~ Sting tickets, Leni ~ Borders card, May ~ Disney passports, John ~ Starbucks card, Jeannie/Tina ~ jewelry, Jinky ~ Chris Isaak cd, Geni/Mark ~ Sarah MacLachlan cd. 100% of proceeds will be donated to the MD Anderson Adrenal Cancer Research Fund at the University of Texas.
18 August 2004
American Cancer Society Relay for Life
Sponsors wanted. I was hesitant to join this 24-hour event that my employer is sponsoring on August 28th in the City of Chino. My co-workers don't know that I'm a cancer survivor and because I'm fairly new at this job I don't exactly like to announce that I am. Yesterday, I received an email from the Finance Director that she would sponsor anyone in our department that would be walking the relay. She's donating $10 to the American Cancer Society for each of us so I made up my mind to do it. It starts at 9 am on Saturday the 28th and it's non-stop walking or running relay until the following morning for 24 hours! One member of our team will always be on the track.
Let's always remember those who have passed and those survivors who continue to fight the battle with cancer.
I believe that one day there will be a cure. How would you like to sponsor me in my first Relay for Life? My goal is to collect $5.00 each from friends and family.
If you would be interested in being my sponsor, please make check for $5.00 payable to AMERICAN CANCER SOCIETY and mail to Cure Adrenal Cancer!, PO Box 604, Chino Hills, CA 91709-0021. Donations are due this Sunday, August 22. More information can be found on the ACS website: Relay for Life.
Let's always remember those who have passed and those survivors who continue to fight the battle with cancer.
I believe that one day there will be a cure. How would you like to sponsor me in my first Relay for Life? My goal is to collect $5.00 each from friends and family.
If you would be interested in being my sponsor, please make check for $5.00 payable to AMERICAN CANCER SOCIETY and mail to Cure Adrenal Cancer!, PO Box 604, Chino Hills, CA 91709-0021. Donations are due this Sunday, August 22. More information can be found on the ACS website: Relay for Life.
14 June 2004
Summer is almost here! How does your favorite beach rate?
"Protect yourself: Most people won't get sick from swimming in polluted waters. But children, the elderly, and people with a chronic illness should be careful. Swim in areas with good water circulation rather than in protected inlets, don't put your head under, and stay out of the ocean for up to 72 hours after a storm." ~ from organicstyle.comThe latest issue of organicstyle.com ranks the cleanest American beaches: Cape Hatteras in North Carolina and Hana in Maui.
Check out or epa.gov/waterscience/beaches or surfrider.org to read about your favorite beach.
Check out or epa.gov/waterscience/beaches or surfrider.org to read about your favorite beach.
13 June 2004
Second annual CURE ACC! raffle deadline exteded
Due to popular demand, the deadline for our second annual raffle drawing to win cool stuff for a very cool cause has been extended. 100% of proceeds will be donated to MD Anderson Cancer Center at the University of Texas. Your donation is tax deductible.Enter by August 21st to put your name in the draw for a pair of Sting concert tickets, Starbucks and Borders Books gift cards, passports to Disneyland, music memorabilia and hand crafted jewelry! Enter today by visiting: http://www.followingthesun.org/raffle.html
11 June 2004
How toxic is your neighborhood?
Find out now by going to scorecard.org and entering your zipcode. Exposure to toxins and pollutants increases the possibilities of respiratory problems, cancer and other illnesses.
31 May 2004
Over the river and through the woods
Drove to Sequoia National Park for the three-day holiday. Hiked up a mountain, through streams and snow to Pear Lake with Jackie, Tracee, Mark, and Shannon. Camped near the edge of a rushing waterfall at Lodgepole (campsite #127! is the one to book). Almost gave up on Pear Lake because of the extreme elevation but so glad we made it! Met some friends along the way.
12 May 2004
Free subscription to Cure magazine
Cure magazine and its website is a wealth of information for both caregivers, survivors and anyone interested in the latest technology for health, cancer and treatments. They offer a free subscription and can also be read online. Here's just a sample of what they offer: Ground-breaking medicine, legal resource and caregiver tips. The "toolbox" page lists links and references to support groups and education categorized by tumor type. I enjoy the Reader's Forum which is a one page personal essay written by a different cancer survivor each month. Get your free subscription today! www.curetoday.com
02 May 2004
Books for kids who have a parent dealing with cancer
ChemoAngels.com gives a comprehensive list of kid's books. You may want to read to your children to help them understand your cancer world. I read a few and recommend Promises by Elisabeth Winthrop. I didn't think that Good Luck, Mrs. K by Louise Borden talked about cancer at all. I was surprised that my local library actually carried a few of these titles. For a variety of books dealing with cancer click on www.chemoangels.com.
01 May 2004
Kids and their parents who have cancer
For young children: www.kidskonnected.org and www.kidscope.org offers a variety of support services free to children ages 3-18.
For older kids, when someone in your family has cancer: www.cancer.gov.
For older kids, when someone in your family has cancer: www.cancer.gov.
30 April 2004
Second Annual CURE ACC! Raffle
Last summer's raffle drawing to win Norah Jones concert tickets raised $1,150 for the ACC research fund at the University of Texas MD Anderson Cancer Center. MD Anderson Cancer Center at the University of Texas is ranked #1 in the United States for cancer research and education. 100% of raffle proceeds will be donated to MD Anderson's ACC Research Fund. Please tell a friend! The purpose of this raffle is to educate and make an impact on raising funds for research on the rare cancer, Adrenal Cortical Carcinoma (ACC). Prizes include Disneyland passes, Sting concert tickets, autographed items, jewelry, and gift cards to Borders or Starbucks. $10 gets your name in the drawing. Enter today.
30 March 2004
Yogurt helps keep the doctor away
The healthy bacteria in yogurt helps cleanse your colon and even lowers the risk of colon cancer. Studies show that eating two cups a day can boost your immunity and lower cholesterol. The best kind of yogurt contains live and active cultures. Forget about yogurt that is "heat treated." All ages can benefit from yogurt. If you're interested in reading on yogurt medical research, here they are -->> Yogurt Reports
10 March 2004
Know your doctor and your rights
There is a shortage of good physicians. Examine your doctor's background. How long have they been practicing medicine? Where and when did they graduate? Have they ever been disciplined or sued for malpractice? Are they licensed to practice in your state? Find your physician and read about your consumer rights by clicking here--> stat!
20 February 2004
Happy Anniversary
Today is my two year mark for being supposedly cancer-free. Supposedly because I've been told that they "got it all" before but then it showed up again over three years later. Where was I two years ago in my journey? Where am I today? Where am I going tomorrow? I feel I've accomplished a lot and at the same time I feel that there is much more to do. Thank you for your continued support for STOP ADRENAL CANCER! Each week I continue to receive signed petitions via email and snail mail. I plan to collect more petitions in the coming months and will be mailing them out, informing legislators, pharmaceutical companies, along with news organizations.
14 February 2004
Peace to you, Fred
Very sad news today. We lost another member in our ACC support group. Diagnosed with ACC in 1989, Fred defied statistics and his doctors' prognosis when told he had only a few months to live. He authored the book, Finding Hope When the Doctors Say There is None, which tells of his life-changing experience with ACC. He continues to inspire many. Peace to you, Fred.
If you would like to read Fred's book, Finding Hope, email me and I'll loan it to you. Or you can order on Amazon.com by clicking here -->>Read Finding Hope today. This book is filled with a wealth of knowledge and inspiration.
If you would like to read Fred's book, Finding Hope, email me and I'll loan it to you. Or you can order on Amazon.com by clicking here -->>Read Finding Hope today. This book is filled with a wealth of knowledge and inspiration.
16 January 2004
Big Bear cabing raffle winner!!!
Congratulations! Nicole of Northridge is the lucky winner of the coveted 3-day cabin vacation in Big Bear. The winner will enjoy Big Bear's winter wonderland from January 16-18. Thank you, Jinky and Dave, for your cabin contribution. Thank you to all who signed the petition to STOP ADRENAL CANCER!
If you haven't signed the petition, do it now by --> clicking here.
If you haven't signed the petition, do it now by --> clicking here.
11 January 2004
Under the Hawaiian sun
Take the day off! That's just what we did as we chased the sun in Hawaii. I loved waking up to the rain hitting the tin roof of our cabin. We kayaked and spent our first day in the emergency room because Jackie stepped on a sea urchin! That did not stop May, Jackie, Carli and I from hiking in Pololu, Waipio or Mauna Kea. One minute we're playing in snow on Mauna Kea (white mountain). The next minute we're exploring old lava flows, such as the Holei Arch, along the coast. I got camera happy after spotting honu basking on the beach. Out of 20 pictures, only one clearly shows the honu swimming (see below). I enjoyed every minute in Hawaii nei. A hui hou (until we meet again). It is now time to adjust my watch to the REAL WORLD.
I spent the last few days in Oahu relaxing from my Big Island expedition. On Saturday Waimea beach was closed due to the dangerous 30-feet waves. All photos below are taken on the North Shore. Unfortunately, I didn't get to see all my friends and didn't feel I had enough time with those I did see.
01 January 2004
Happy new year!
Gone fishing...in Hawaii. For the new year, my friends and I plan to chase the sun on the Big Island. If I don't come back, don't look for me.
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